Our little Alice is 8 years old. Despite her delays and other signs, we didn't realize she was living with disabilities until she was 12 months old and, after months of nail biting searching and fighting the system, finally got CASK gene disorder diagnosis when she was 20 months old.
Despite all the challenges she faces and recent epilepsy diagnosis, Alice's condition doesn't define her. She is living her life to the fullest.🎈🌟 Alice loves singing, reading and playing ukulele. She is not walking completely independently yet but it doesn't stop her from enjoying dancing. 💃 Please give what you can so that we can find cure, no amount is too small and/or share! Thank you! Alice is sending you many hugs! 🥰