We are working hard to give our son a fuller chance at life. Ved is 9 years old and has a rare neurological disorder. In order to save Ved and similarly situated children, we have started the Cure Pogz Disorders Foundation. The purpose of the foundation is to fund the work of researchers and scientists to develop a cure for Pogz Disorder. The most pressing project, which could literally save Ved is the development of a gene therapy. The effectiveness of gene therapy decreases as children grow and as the disease progresses; so time is running out. We are raising $2,000,000 to fund the various stages of this gene therapy project. We are openly asking for your support of this project, which is our son’s best hope for a fuller chance at life.

We know that the sooner kids receive gene therapy, the better the outcomes. Our work is not just going to benefit Ved and similar kids, but will accelerate science and technology to treat many other diseases like Cancer, Alzheimers, Parkinson's and other genetic diseases.

We KNOW that we cannot do this alone. We need your help.

Foundation's web Page : https://curepogzdisorders.org

Our Team : https://www.curepogzdisorders.org/our-team

HOW YOU CAN HELP TODAY:

1) Donate what you can
2) Share this fundraiser with your networks via email and social media
3) Reach out to us at swapna@curepogzdisorders.com to discuss larger donations, donating via check, stock or crypto, organizing a fundraiser, company matching, corporate sponsorship, media/PR, grants

It ALL helps, and it’s ALL important.

WHERE IS YOUR MONEY GOING?
All money raised will go directly to develop a cure for the disease. All CPDF employees are volunteers and don't take a salary.

WHY SO MUCH MONEY?
Research and development of cutting edge technologies unfortunately often falls to patient groups to fund them until such a stage that a large pharmaceutical company may see the monetary value and take it the rest of the way to full clinical trial and distribution.

URGENCY IS THE NAME OF THE GAME
The sooner we can intervene with a gene therapy, the better the chances of outcomes

Can I write a check?

Yes, Please make checks payable to

Cure Pogz Disorders Foundation

Mail To :

Cure Pogz Disorders Foundation

2309 Aimee Ln

Schaumburg, IL -60194

THANK YOU for being a part of our journey. Your support is life-saving

Cure Pogz Disorders Foundation
EIN: 99-1871449 (501c3)

Any questions, reach out to swapnasasidharan05@gmail.com

A Fuller Life for Ved

Raising $ to find a cure for Pogz Disorder

Team Members